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Annenberg School of Communication and Journalism University of Southern California
Southern California

San Diego Teen Continues Golfing Despite Losing Vision

ATVN’s Shaleeka Powell reports on the inspiring story of a San Diego teen who took action against his rare disease.

Jeremy Poincenot
Jeremy Poincenot



At the age of 19, Jeremy Poincenot was diagnosed with Leber’s Heredity Optic Neuropathy (LHON), a rare disease that causes sudden and severe loss of central vision. Being a passionate golfer, he was devastated. Mark Prophet, Jeremy’s best friend, said, “He stopped leaving the room, he stopped going to class, [and] he stopped eating.”

Then Jeremy decided to take action.

Not only did he continue golfing and win a championship, he also started a fundraiser. The Cycling Under Reduced Eyesight (C.U.R.E) Ride, a four day bike ride from Santa Barbara to San Diego, has raised over one hundred and fifty thousand dollars. The money goes to researchers looking to find a cure for LHON.

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